Patience is the best gift you can give me. It allows me to work deliberately and at my own pace, allowing me to rebuild pathways in my brain. Rushing and multi-tasking inhibit cognition.
I feel lost with this one. Izzy was patient with me but as for the rest, I don’t feel like I am treated with patience. Nor do I feel like I am heard. I know I am twisty emotionally but I don’t know what to do about that.
I lay there when I emerged from the Coma and I knew that nothing was working. Not my limbs or body or bladder.
I lay there and knew that I didn’t know what year it was – or month.
I thought I would be looked after but I wasn’t. I don’t know how deep nor how hot my anger over that is.
No matter. I am working this out – slowly. I swear I can almost feel the pathways. There is still the bit missing in the left side of my head. Some days everything fuses like it has the last few days and sparks have been flying. My head don’t feel like my head. My skin don’t fit and my eyes bulge.
I am REALLY grateful that mostly my brain is functioning. God knows who would look after me if it didn’t because there don’t seem to be anyone around to do so. But it does and I can work things out as long as I am left to the days where I can and in the manner which I can.
STREWTH, RUTH – THIS IS SHITE.
Be patient. Be patient. I don’t know how to get to Sydney to see the Baby Louis. I don’t know how to register my car. I don’t know how to get to meetings out of Urunga. BE PATIENT.
They tell me that D and R have planted flowers for me in my garden. Their strange, background kindness brings me undone.
The vegies are thriving and although they don’t usually plant flowers, they have done so. I am doing a lot of internal rewiring and rebuilding in here, People. And I am getting just about as much help as the Governments of this world are giving disaster survivors. Its OK but I will not be appearing or actin normal for quite some time yet. If you don’t want to be near someone who is in the process of early reconstruction – bugger off. This is the best I can do.
CHEERFUL THOUGHT FOR TODAY : POINTS OF RECOVERY : YOU’RE NOT YOU WITHOUT A MEETING.
- I need a lot more rest than I used to. I’m not being lazy.
- My stamina fluctuates, even though I may look good or “all better” on the outside.
- rehabilitation takes a very long time; it is usually measured in years
- I am not being difficult if I resist social situations
- If there is more than one person talking, I may seem uninterested in the conversation.
- If we are talking and I tell you that I need to stop, I need to stop NOW!
- Try to notice the circumstances if a behaviour problem arises.
- Patience is the best gift you can give me. It allows me to work deliberately and at my own pace, allowing me to rebuild pathways in my brain. Rushing and multi-tasking inhibit cognition.